ABOUT US
OCAA is the 'Owners Corporation Association of Australia', established in 2016 by several prominent strata lot owners, for the benefit of all lot owners who live in an owners corporation.
A RESOURCE SET UP FOR LOT OWNERS
Foreword by
Governor-General, Her Excellency
The Honourable Ms Sam Mostyn AC
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For many years it has been my privilege to work for equality for women. During that time, I have learned from so many women of the devastating pain and misunderstanding that accompanies endometriosis.
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On the good news front, this dreadful, debilitating disease is now the subject of more open conversations, of improved understanding, and of better funded research than ever before. In the last decade, more and more women have spoken up and spoken out about their experiences with this insidious disease. More and more are breaking the silence, and lighting the way for those who live with endometriosis.
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And there are many of them. One million or more Australian women and girls live with endometriosis, many of them still burdened by the myths, silences, and misrepresentations that have surrounded it for generations. I know so many of these women, young and old.
The Australian Institute of Health and Welfare tells us that the number of women diagnosed by the age of 50 has risen to one in seven.
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For many women, a comprehensive diagnosis is often the answer to a question that has dogged their health and wellbeing for years. Especially when, on average, diagnosis takes 6.5 years – longer for women in regional and rural areas, and in disadvantaged communities. Receiving a diagnosis after years of pain and suffering can be the beginning of a better life.
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This book is part of that journey. It offers support and affirmation, as well as practical insights and empirical, evidence-based conclusions. It breaks new ground in sharing the game-changing advances in endometriosis health, infertility and research. To the women who share their own experiences here with great courage and honesty, my heart goes out in gratitude. You represent so many of the women in my life who share your experience.
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This book is an expression not only of medical rigour and bold advocacy, but, fundamentally, of care. Care for the many who are suffering. Care for the networks of frontline workers and health professionals who themselves are giving constant care with outstretched hands and thoughtful counsel.
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My hope is that in the years ahead, endometriosis will be less of a menace to health and happiness, and more of a cause to celebrate medical breakthroughs, respect for women, and the widening circles of care that encompass every woman and girl.
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Honourable Sam Mostyn AC Governor-General of Australia
Endorsements
​“A useful, usable companion for all those with endometriosis or caring for someone with endometriosis.”
Professor Jason Abbott, of Obstetrics and Gynaecology, UNSW Sydney Australia
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“A much-needed evidence-based, accessible book for those living with endometriosis and challenged by fertility.”​
Professor Luk Rombauts, Past President World Endometriosis Society, Fertility Society ANZ, Medical Director Monash IVF
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“This book will be life changing for women of all ages. It will help end the silent suffering that’s been the ‘women’s lot’ for generations.”​
A/Prof Magdalena Simonis AM, Women’s Health expert, Department of General Practice, University of Melbourne.
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"I wish this book had existed when I was younger, lost in the maze of pain and uncertainty, searching for answers. It might have been the guide I needed while navigating the long road to diagnosis and understanding my own body. May this book provide some guidance and support on your endo journey.”​
Ellie Angel Mobbs, award winning broadcaster, endo warrior podcaster.
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“The impact of endometriosis on the lives and wellbeing of women is profound. Despite this, many aspects of the disease are poorly understood, and high quality treatments are lacking. Maree Davenport shines a light on this complex disease with informed input from a wide range of stakeholders. Essential reading for anyone wanting to understand more about living with endometriosis.”​
Professor Peter AW Rogers, Professor of Women's Health Research, University of Melbourne; Director of Research, Royal Women's Hospital; Founding Director and current Board Member, Jean Hailes Foundation.
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"I wish I had access to information about living well with endo sooner. There was nothing like this available when I was diagnosed at a young age. This book will be amazing for those on their endo journey."
Kayla Itsines, Fitness Guru, Sweat founder, Author
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“The only way we can effect improved Endometriosis care is by brave people sharing their stories. Congratulations to Maree Davenport and her contributors for explaining the challenges, providing context, understanding and advocating for change in this book that will positively impact many peoples lives.”
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Professor Louise Hull, University of Adelaide Endometriosis Group, Embrace Fertility owner and registered fertility specialist, International Ambassador for World Endometriosis Society
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