Your trusted guide for understanding and managing endometriosis

'Laying bare the pain down there'A book sharing lived experience to  support1 in 7* Australian girls and women +to  navigate and live well withendometriosisand chronic inflammatory conditions.

One in seven Australian women live with endometriosis. If you or your loved ones are among them, then you know just how hard it can be to get the answers you need.

 

The Australian Guide to Living Well with Endometriosis aims to help you recognise, manage and treat this life-altering condition. Drawing on the latest medical research as well as the real-world experiences of diverse Aussie women, it delivers science-backed information and expert advice. With this book, you’ll feel more empowered to navigate all the challenges that come with endometriosis.

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This book is a tapestry of deeply personal lived experiences, 'endo warriors' who shared their own journeys, struggles, and triumphs; they infuse their narrative with a unique perspective that resonates deeply with those challenged by endometriosis. ​

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 Governor-General, Her Excellency

The Honourable Ms Sam Mostyn AC 

Foreword in support of the one million Australian girls and women+ living with endometriosis.​

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Contributions from 'endo warriors':

Kayla Itsines, Dr Emma Watkins, Ellie Angel-Mobbs, Sophie Dillman, Julie Snook, Nicolle Flint, Max Jahufer,

Julia Argyrou, Akaiti James (Endometriosis WA), Dr Helen Schiele, Dr Lisa Gadd, Dr Eliza Colgrave, Rachel Payne MLC (Parliament of Victoria), Kaila Murnain, Jo Armstrong,

Lisa Nguyen, Patty Pardillo, Sara Stuart, Antara Mascarenhas, Kristina Luburic,

Anna Thomas, Kristy Penrose, Jessica Coldrey and Alicia Evans. 

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Health practitioners and researcher contributions:​

 Gynaecologists

Professor Jason Abbott, Professor Luk Rombauts,  Dr Samantha Mooney and Dr Tarana Lucky 

General Practitioners and Women's Health experts

 Professor Danielle Mazza AM and

Associate Professor Magdalena Simonis AM 

Allied Health

Dr Lisa Gadd, Osteopath

Rachel Andrew, Physiotherapist (Vagenius)

Endometriosis Nurses

Stephanie O'Kane (JAECE)

Dr Maryam Moradi (Women's Health, CALD) 

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Australian Parliament non-partisan support:​

Honourable Ged Kearney MP, Assistant Minister for Health, Aged Care and Indigenous Health

 Senator the Honourable Anne Ruston, Shadow Minister for Health, Professor the Honourable Greg Hunt, former Minister for Health, former MPs Gai Brodtmann, Nicolle Flint, co-convenors Nola Marino, Lisa Chesters and all Members & Senators of the

Australian Parliamentary Friends of Endometriosis Awareness.

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Endometriosis can affect body image, sex life, fertility and family planning. The daily pain experienced by many women can even stop them from fully participating in the life they choose to lead. The Australian Guide to Living Well with Endometriosis is a handbook for finding the strategies, the tools and the hope you need for navigating and managing your care. Inside, you’ll learn how to find your voice as a patient and advocate. From getting diagnosed to getting treatment, you’ll feel more confident in taking charge of your health and speaking up for yourself.

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What’s more, you’ll discover you are not alone. You’ll read inclusive, deeply personal stories from real Australians ― from well-known figures like Kayla Itsines,  Emma Watkins, Sophie Dillman and Julie Snook to everyday women in education, business, politics and more.

• Understand your symptoms and the info you need to share with your doctor.

• Learn how to navigate the complex healthcare system and discover how different medical professionals can help you.

• Understand treatment options like medications, surgeries and physio.

• Discover how endo can affect your fertility and what’s involved in IVF.

• Get lifestyle tips and tools (including diet, nutrition and exercise) that can help in managing flare-ups.

• Read expert advice from GPs, gynaecologists, world-class researchers and other women’s health professionals.

The Australian Guide to Living Well with Endometriosis is a must-read resource for managing your physical health and overall wellbeing ― so you can truly live the life you choose when it comes to home, school, family, sports, work and beyond.

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