Understanding Endometriosis: Symptoms, Diagnosis, Treatment, and Self-Care

Endometriosis (endo) is a 'taboo' health condition in Australia, affecting 14% of girls and women, totalling around one million people. It's as prevalent as diabetes, yet it takes an average of six and a half years for a diagnosis, even longer in rural and regional communities and among those challenged by 'gendernomics' and intersectionally disadvantaged groups.

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Globally, the World Health Organization (WHO) estimates that approximately 190 million women and girls of reproductive age are affected by endometriosis. This chronic condition impacts every aspect of life, including fertility, body image, and sexual health, while often causing pain severe enough to prevent people from fully participating in daily activities, study and work.

The Australian Guide to Living Well with Endometriosis

This guide extensively explores the life-altering effects of endometriosis using data from the Australian Institute of Health and Welfare (AIHW), personal stories, and empirical research on how the condition affects education, work, and relationships.

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Key insights come from a wide range of experts, including GPs, gynaecologists, fertility specialists, women's health professionals, and allied health practitioners. These contribute to a holistic understanding of the condition and its far-reaching effects.

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The book also interviews influential figures in sports, fitness, media, television, First Nations, LGBTIQA+, and CALD groups. Other 'endo warriors' sharing intimate insights include successful businesswomen who thrive despite their endometriosis and share their personal journeys and perspectives on living with endo.

Comprehensive Coverage of Endometriosis

The guide covers a broad range of topics, including:

• Symptoms of endometriosis and how to track and communicate them to healthcare providers.

• Navigating the healthcare system and preparing for physical exams, medical imaging, and treatments.

• Insights into fertility, IVF, and the role of surgery in managing endometriosis.

• Information on managing endometriosis in young girls and women+.

• Endometriosis-friendly, low-inflammatory diets, integrative wellness therapies, and exercise routines.

• The importance of pelvic physiotherapy, managing comorbidities and recognising predispositions.

• Where to find evidence-based, empirical information to make informed treatment decisions.

• The guide also discusses medical misogyny and how women+ can advocate for themselves.

 

It outlines the multidisciplinary and patient-centred approach. It encourages participation in medical and social research and self-advocacy to improve outcomes for you and others.

Empowering Self-Management and Advocacy

This book serves as a valuable tool for those affected by endometriosis, helping them recognise what is not normal, such as painful periods or heavy menstrual bleeding. It aims to provide a clear path toward understanding the condition and seeking appropriate medical care.

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Readers will find tips for managing flare-ups and guidance on advocating for themselves in medical and everyday settings.

 

The guide seeks to encompass and empower "endo warriors" by equipping them with the confidence and tools to manage their symptoms at home, school, or work.

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